Monday, December 29, 2008
11:45 pm change 3 FULL diapers and feed 3 hungry babies
12:45 am lay down to bed
1:00 to 3:45 am check on Hannah since she is crying. all she needed was her mommy to walk around and rock her
3:45 am change diapers and feed
4:45 am lay down to bed
5:00 to 6:30 am check on Hannah; she is still fussy, she really likes mommy to walk her around
6:30 to 7:45 am finally got some sleep
7:45 am change diapers, feed babies
8:45 am Josh worked from home while Teri had tummy time, did dishes, showered and call 7 doctor offices
11:30 am change diapers, feed babies and change their clothes then get them in their car seats
12:30 pm leave for pediatrician apt
1:15 pm arrive at pediatrician
2:30 leave pediatrician office
3:00 pick up a quick bite to eat
3:30 Teri has a doctor's appointment (stomach problem; either stomach lining damage or gall bladder both caused from pregnancy) while Josh fed babies in the car
5:30 pm got babies home, changed diapers and put them to bed (can I go to bed? Nope, chores to be done!)
5:30 pm make bottles for the next 24 hours, laundry, trash night, dishes and tidy up
7:30 pm Samantha's bath time
7:45 pm change diapers and feed
8:45 Josh leaves to go visit Sandra while Teri finishes up with babies and chores
11:45 pm Josh gets home and we start all over again
So, as you can see we are constantly on the go and very busy. We take turns visiting Sandra. The girls did great at their doctors visit. Hannah got two immunizations. One was oral and the nurse said that she was the first to actually like it and ask for more. However, she didn't like her shot. Josh and I have been worried about Makaila's voice. It is very raspy, deep and sometimes soundless. Since she was on the ventilator the longest she has a greater chance of vocal cord damage. The doctor has referred her to an Ear, Nose and Throat doctor to be evaluated. We are to bring in the girls every two weeks for weight checks. Their current weights are: Makaila - 6 lbs 12 ozs, Hannah - 6 lbs 12 ozs (can you say identical?) Samantha 7 lbs 4 ozs and Sandra - 4 lbs 8 ozs. Hannah is again VERY congested and constantly needs to be bulb syringed. I actually think it is worse then before. The doctor seems to think it is from reflux. With that and a sore bottom from a diaper rash I can understand why she is fussy. She is fussy right now so I have to go check on her.
Sunday, December 28, 2008
Sandra still seems to be having a sleeping brady a day. Which is better than she was having but it is the ones during sleep that concerns everyone. So, she will not be coming home in 2008. Yesterday, she through such a temper before a feeding that she scratched the whole right side of her face. Apparently, nurses are not allowed to trim their nails and don't even have nail clippers so I had to bite each one off so she doesn't do it again. Today the doctor switched her from the 24 calorie formula to the 22 calorie (the one she'll come home on). She is also allowed to eat as much as she wants. I am sure she was ecstatic to hear that! I don't think she has felt a full belly in a while.
Life is busy and a little hectic sometimes. But to be honest with you I thought it would be a lot worse. I think it is going smoothly because Josh and I are a perfect team. We communicate and include a lot of humor in the stress of it all. We can't wait to have Sandra home to go from a full house to a full home!
Thursday, December 25, 2008
Who does this baby look like?
Makaila, Hannah and Samantha reunite. Is Hannah telling Samantha secrets?
3 Divas and their Christmas teddy bears. Thank you Sandy and Donald!
"How the Grinch Stole Christmas was Mommy and Daddy's first date 8 years ago!
I think Makaila slept through her first Christmas!
Wednesday, December 24, 2008
So, we were all sad to see Debbie leave. But while Josh was visiting Hannah and Sandra he met with their doctor. We got some of the best news ever! I am so excited and filled with emotion as I type that my eyes tear up thinking about it. Sandra will be coming home either Monday or Wednesday next week. Yup, next week! I get emotional when it comes to Sandra making big milestones because she is the one that we were told we would lose. And now they are sending her home next week.
I wanted to call someone and tell them the news as I was so excited! I called Josh's mom. After sharing the news she told me that she had a medical concern and will not be able to visit until Jan 7th. We will keep her in our prayers and hope things are ok. But this means that we are on our own until then. I know that Josh and I can do it but it will be rough. It will definitely take both of us to do all feedings since Hannah and Sandra aren't ready to be prop fed. Sandra will be coming home on an apnea monitor as she still has some episodes. The hospital has changed Hannah to 4 hour feedings but I am not sure Sandra is ready for that yet. Should be interesting! We will be taking Hannah, Makaila and Samantha to the pediatrician on Monday. The real test is when I take them to their hearing exams while Josh stays home with Sandra. Two arms and three infant car seats. hmmmm! So, if we go without a post for a few days you'll know why!
Tomorrow, I am picking up Hannah! What a great way to spend Christmas (my due date). I am so excited! The doctor and the case worker did all the paperwork today since they know I am anxious and will be there early in the morning. Speaking of Christmas, Hannah and Sandra got their picture taken with Santa yesterday. They are so cute! Speaking of cute, we are listening to our household chipmunk (Samantha has the hi cups) on the baby monitor.
Saturday, December 20, 2008
Several things to notice in this video...
1. Hannah and Sandra in the same crib!
2. Sandra without nasal cannula!
3. The size difference between Hannah and Sandra!
Sandra continues to amaze us with her bottle feedings. The doctor increased her to 36 ccs because she was always hungry. She still is finishing her bottles in about 5-10 minutes. That is crazy! Hannah is still doing great with her bottles and eats about 60 ccs. She still once in a while de sats during her feeds. I keep telling them to remove her pulse ox and then we won't see any de sats. I am hoping they still plan on sending her home Tuesday! We are now trying to deal with insurance and all the referrals that the kiddos need. The good thing is that their RSV shots were approved. They run $1000 and are a monthly series until April. That adds up to $24,000. Their hearing referrals had to go to another doctor, which I didn't mind. However, they denied Samantha's plastic surgery doctor because he is out of network. We have an appeal in though. Luckily, our pediatrician is on top of all of it.
Thursday, December 18, 2008
Sandra's precious feet!
Hannah is due home Tuesday! I am so excited! I am glad she comes home before Auntie Debbie has to go home (Wednesday). Josh let the doctor know that Makaila and Samantha are on a 4 hour schedule. So, they are going to put Hannah on that schedule so it'll be easier for us once she is home. One less thing we will have to do. Every little thing can help, even the small things. Today Hannah and Sandra got their immunizations. That way they are close to being on the same schedule with Makaila and Samantha. However, they are on different schedules for their RSV shots. Tomorrow Sandra will be going to an open crib. They were going to do it today but didn't want to over stimulate her after her shots. I am so excited that she graduated from the isolette. It is so much easier to just grab them and kiss them in the open crib. One big step for a little one.
Hannah and her pacifier!
Tuesday, December 16, 2008
Did Makaila find her thumb?
Samantha's first bath! Thank you Aunt Linda for my cool bathtub!
Monday, December 15, 2008
Makaila and Samantha had their first doctor's visit today. Even though we had to wait longer then we wanted to, we liked the doctor. She seemed friendly and great with the girls. We are not going to have to boil the water for their bottles any more which will save us a bunch of time. Makaila weighed in at 6 pounds and Samantha at 6 pounds 6 ounces. Yeah! I was so proud of them on their weight gains.
Hannah is getting 6 bottles a day now and Sandra 3. They both are doing great with their bottles. Sandra's caffeine and Reglan was increased since she also has gained weight. She now weighs 3 pounds 9 ounces. Hannah is still congested and needs to be bulb syringed prior to her bottles. But if they do that she does good and doesn't need oxygen. Debbie and I visited them on Saturday and Sunday while Josh played with Makaila and Samantha. Speaking of Josh, he got A's in both of his classes this semester. Good job Josh! I don't know how you did it with how busy life has become.
Saturday, December 13, 2008
Thursday, December 11, 2008
Wednesday, December 10, 2008
So, we get to the NICU very excited to get Samantha packed up to go home. I get a call from the nurse practitioner to tell me that Makaila will be going home Friday or Saturday. Now I am even more excited. Samantha is ready to go home but Josh isn't off work so we have to wait. As I was giving Sandra her bottle she had a brady and refluxed so she was unable to finish it. After that, Debbie and I decided to get a bite to eat. When we get back Sandra was having Brady's almost every 5 minutes. They did blood work, chest and abdomen x rays. Her colon was inflamed pushing on her lungs and she is anemic again. She is getting a blood transfusion and they decreased her amount of food to let her tummy settle. Now I am literally torn to pieces with all the emotions. It was time to go home with Samantha and we had to leave Sandra not feeling well. But we know we left her in good hands and will call often.
Samantha was a princess on her way home and didn't make a peep. And I think she loves her new home. She is settling in nicely. As we were making dinner I looked outside and it was snowing. Yes, I said snowing! It was yet another high of the day! The snow is sticking but probably not for long! Maxine sure looks cute with snow stuck to her fur. She is enjoying the snow. Boy, is it cold outside though!
Debbie was released from the hospital last night also for all concerned! I will post pics tomorrow of the girls! I know you all were awaiting to see if Samantha came home today so I wanted to post that at least. Josh and I will now trade off on visits to the NICU and tomorrow is his turn.
Tuesday, December 9, 2008
Deb is very anxious to get out of the hospital since Samantha is going home tomorrow. Yup, that's right! She passed her car seat test and her developmental tests. She did not pass her left hearing test though. Not to be alarmed though. She will be retested in 2 to 4 weeks and if she fails that one then they will do a diagnostic test. She now weighs 5 pounds 9.5 ozs. She is getting her immunizations today. The poor girl! She is allowed to have as much formula as she wants. She usually eats 55 to 60 ccs. She will continue to see see Physical Therapy about 3 times a week for her arm. And we will do silicone changes and massage therapy at home. She will also continue to see the plastic surgeon possibly weekly. We are hoping to have PT came to the house to cut down on car trips.
Makaila is anxious and not far behind Debbie and Samantha. They hope to have her home Friday or Saturday. She needs to not have De Sats during her bottles to make that happen. She is also getting between 55 and 60 ccs by bottle and had her feeding tube removed. Both Samantha and Makaila take their bottles in about 15 minutes. Which is amazing!
Hannah still has a cold and struggling with her bottles. Occupational Therapy is working with her. She still tries with 3 bottles a day. Sandra now gets two bottles a day and doing great. She had her nasal cannula removed today. She still has brady's but the doctor felt that the nasal cannula wasn't helping her not have them. But thought that maybe might causing them due to nasal congestion she gets from wearing her nasal cannula. They are still weaning her off of the isolette and she is able to continue to maintain her temperature.
Josh and I are preparing for the girls homeward bound. Saturday Debbie, Josh and I took a CPR class on infants. Normally, preemie parents stay a night at the Ronald Mc Donald house one night prior to taking their baby home. However, I guess we have proved ourselves because our doctor doesn't find it necessary for us to do that. We had to be signed off on different duties...diaper changing, bottle feeding, temperature taking. All things we have been doing since they were born. So, it was all an easy sign off.
Sorry for no pictures this update. I am at the hospital writing this. Hopefully the next picture of Samantha will be in her new home.
Saturday, December 6, 2008
Makaila got caught sleeping!
Sandra chilling out after her calisthenics!
Hannah catching up on some z's!
Samantha's first time in a swing!
Wednesday, December 3, 2008
Makaila - now taking 6 bottles a day and finishing them so far. She is the messiest eater in the bunch. We are going to need a lot of burp clothes for her. Her feeds have increased to 45 ccs every 3 hours. She is off of nasal cannula and breathing on her own fantastically.
Hannah - is taking 3 bottles a day at 45 ccs each. She is a little silly in the fact that she wants to sleep when we try to feed her. But as soon as we put her in her crib she is wide awake and ready to party. She is off of nasal cannula but sometimes has to wear it when she takes her bottle because she pretends to be sleepy. The other day we had Makaila, Hannah and Samantha lay next to each other and Hannah cuddled right up to Makaila. It was the sweetest thing ever. That is why I decided to keep them two together in their new apartments.
Samantha - was getting 8 bottles a day but got tired out and wasn't finishing them so she is now getting 4 a day. She is eating 47 ccs every 3 hours. Her arm is healing well and is still doing physical therapy along with massage. She now is wearing a silicone wrap to help with the scarring. She has the chubbiest cheeks and is very adorable.
Sandra - is still in her isolette but has started maintaining her own temperature and will start to wear clothes now. She is doing great on her nasal cannula except for the fact she pulls it out constantly. She is by far the feistiest and strongest. She may be small but do not doubt her. She got her first bottle today and took 7 ccs without any breathing issues. She has changed so much lately. Sometimes I look at her and she reminds me of Makaila and Hannah and other times she looks like Samantha. So, she is definitely a mixture of Josh and I.